Jim Dupont and Beth Miller both have daughters who have presented with the tic like symptoms and both do not have a clue why this is happening reports Berkeley Brean of WHEC.com. Tourette is a neurological condition with an uncontrollable tic feature.
Early January 2012, the parents of LeRoy New York students were updated by Dr Gregory Young of the New York State Health Department, the state office of Mental Health and the LeRoy school authority. The parents were informed that although the symptoms presented were real, no cause could be pinpointed. Stress is one factor being blamed.
What factor or a group of factors could trigger a signal cascade to cause a cluster of Tourette like syndromes in one school district?
The parents of the twelve girls who came down around the same time in 2011 with Tourette like symptoms are quite concerned. These were twelve normal girls earlier. Not today. Jim Dupont, a parent interviewed is very upset and not optimistic about his 17 year old daughter’s future. His daughter was ready to drive and now cannot. Beth Miller found that her healthy daughter woke up one morning with twitches.
If you can help these families or help prevent future clusters please let us know by commenting here. We want to hear from you and know that you care. Please read Berkeley Brean’s article which has more from one of the young girls herself. You may also call Jim Dupont or Beth Miller at the numbers below and let them know that you care:
Dupont and Miller are starting a support group for all the parents. They think if they work together they can get somewhere.
Here is the contact information:
Jim Dupont: (585) 746-2001
Beth Miller: (585) 356-7508
We’ve posted the unedited interview with the commissioner from the health department here at www.whec.com. We encourage people to watch it. It may not answer all of your questions but it might answer a few.
My daughter has been chronically ill since November of 2009, within a month of receiving her third Gardasil shot. It took me a year and a half to discover the link between her symptoms and the Gardasil shot. Thousands of other families are dealing with almost identical situations. I’m sharing this because we have found support via a Facebook group, Families Affected by Gardasil, and it has been a sanity saver to have others to get feedback from. I am truly sorry for the girls in Le Roy and their families. They should consider starting a Facebook group so others can join and provide information that might be helpful.
Thank you for sharing Wendy. I am terribly sorry to hear about your daughter being ill since 2009 as a result of Gardasil. I doubt if she would have ever been in contact with a person from whom she would have contracted the disease this vaccine is supposed to prevent. A miniscule few women and men observe habits that lead to the spread of cervical cancer. To save the lives of a few irresponsible women and men, we are risking the health and vigor of the large majority of our young women. I know that you can become a spokesperson for your daughter.
I promise to dedicate my knowledge, scientific skills and time to hunting down the group of probable causes – it is not a single factor alone but a combination of factors present at the same time. I also promise to constantly be aware of the researchers involved in a cure. There must be a cure. We cannot lose our healthy young women. Your daughter, and all her generation who suffer because of our negligence about speaking up against authority, deserve that from our community.
Wow…in shock. When I saw this article on TV but I know the desperation of the parents because my daughter was diagnosed with chronic involuntary movements in 2010 after presenting the same Tourette’s like symptoms. She was prescribed harsh anti-psychotic -(Respridol, Tenex) medications that just made it seem she was completely out of it. I did research online and based on a timeline of events that included dental amalgalm fillings the month before she started presenting symptoms I opted for removing any fillings that contained mercury and started her an a supplement called Natural Calm/Peter Gillham brand. After 3 weeks from removing her fillings and drinking the supplement she had her last involuntary movement in her abdominal section. After that she has been fine I am in shock though to see the situation of a cluster of teens from the same school…I wish them the best of luck in figuring out what is happening as it is something very mysterious.
I am so relieved to hear that your daughter’s involuntary symptoms improved on removing mercury teeth fillings and beginning a natural supplement. The digestive system’s natural flora is being implicated in many complications seen today. Probiotics and other natural supplements such as yogurt with natural live flora are definitely helping. You may want to read my article on ‘hook worms curing multiple sclerosis’ on this site. The researcher in Argentina is curing a few MS patients!
How old is your daughter and did she get the gardasil vaccination?
I would be curious to know if the girls recieved any vaccinations or other perscribed medications just prior to symptoms. My co-worker’s daughter had a sudden onset of neurological issues immediatly after getting the live swine flu vaccine. She was 14years old at the time. It took a long time but a Mayo Clinic Physician finally confirmed that the onset was a result of the vaccination. Best of luck!
To my knowledge the only vaccine tested and ruled out was Gardasil. I will update if this is incorrect.
I am so sorry to hear about your co-workers daughter’s reaction to the live swine flu vaccine. It is possible that she had a prior active infection when she went to get the live flu vaccine. She should have been denied the shot and asked to return when recovered. My heart goes out to this little girl. I do hope she is improving.
Did the girls all have the HPV vaccine?
Most adolescent girls are being ‘required’ to take the gardasil vaccine by their pediatrician, unless the parents vehementally objected with knowledge based arguments. College dorms require girls to show that they have had the gardasil vaccine to get a dorm room!
There has to be a common denominator! Do not rely on the so called scientists answers, there are too many politics involved always!
Something the girls were exposed to through either air, water, food, pesticide , fungicide, new cleaning agents. It has to be there so plain in sight to be overlooked! Activities, parties they attended together???
Otherwise it is mindboggling.
We are thinking of you and worrying about our children too.
Anna B
The school ground as a common denominator was checked for the usual contaminants including carbon monoxide and ruled out. Again, the list is not available. As I learn more I shall update. The role of each contaminant was tested alone. Researchers have suggested that it is possible a combination of factors sets of this signal cascade. However, it is against ‘legal methodology’ to test for a combination of factors, preventing such research. Perhaps, an awareness by the public of this single factorial method may spur action. It is natural to test various combinations of possible factors before ruling any cause out. However, to my knowledge only single factors are being officially tested. Please, correct me if I am wrong.
So sorry about what has happened. I am sure people have asked this before but did the girls involved have the vaccine for HPV or cervical cancer. There have been some reported side effects to this vaccine.
The vaccine Gardasil was ruled out. I don’t know what criteria was used to do so. I will update as I learn more.
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my stomach is churning i can’t stop thinking about these girls .i have contacted chej.org. and i hope they are in contact with you.they assured me they are looking into it. the head of this org. is lois gibbs the love canal hero. i’m keeping in touch with this story .my thoughts are with you all.
Thank you for contacting chej.org and alerting lois gibbs.
You live in a rural community with a lot of farm land. In the fall what’s being sprayed? Fertilizers, pesticides, herbicides? What was sprayed in close proximity to the school, athletic fields, or near these girl’s homes? Any new products (weed killers, fertilizers) applied to athletic fields at the school? Was there any aerial spraying for pests (flies) in your area in the fall? Those pesticides target the central nervous system…
Excellent question! Now, talking about environmental factors – authorities informed the LeHigh parent community that each suspected environmental factor had been ruled out and that the school itself was safe.
However, it would be preferable if answers to your questions were publicly available for independent experts to come up with association study suggestions. Perhaps, you could call the LeHigh school, Ny and ask them to immediately provide this detailed information of pesticide/herbicide spraying around those critical months/weeks in a format easily accessed by all.
I am a Naturopath/ Energy Medicine healer. Several of my clients called me and expressed their concern that I should somehow contact these families. Like others in my field, we are concerned about making our information public for fear of retrobution. As mentioned above, I would like to know if these girls received any of the newer vaccines….more specifically the meningitis vaccine? The gardisil vaccine and hepatitis B vaccines are severely damaging, but I have worked with many young adults who took the meningitis vaccine and then became paranoid, severely depressed, and with tourettes-like symptoms. The illness was more severe and symptoms worsened with the intake of high sugar/carbohydrate foods. We were able to correct the illness by putting them on specific nutrients to support their organs and by keeping their diet as only well cooked meat and vegetables. Eliminating: pasta, rice, cereal, bread, all fruits and juices (except berries), potatoes, beans, corn, protein bars, cakes, cookies, pop and milk was a key factor! Basically anything that came in a box or was man made, had to be eliminated as well as high sugar foods.
I will check back on this post if there are any questions. Please understand that there is never just one thing that causes an illness. It’s multiple problems that are already occurring and one final event is the last straw that breaks the camels back.
Re-establishing the body’s chemical balance is the key to reversing the problem. Eliminating foods/drinks that break down the system will help rebuild it. Getting the right whole food nutrition to make the rest of the corrections is the next thing necessary to help the body heal itself.
Thank you, for helping with your knowledge. Do call the parents whose phone numbers are in this article. You may also be able to help by creatively coming up with a solution on how to reach more with your message. You cannot do it alone. Perhaps, you can find people with the skills you need to spread your message of good nutrition and general health. It is a sensible message, with a wide, receptive audience. You need to reach them.
Do visit this site and offer your nutrition advice on our other topics, such as iron overload, and autism and more. Our readers will appreciate your knowledge.
I watched the story on the today show and I believe I have the answer. The chorea form movements , disturbance in speech patterns likely represent a post streptococcal syndrome. The body has created autoantibodies which have attacked he basal ganglia of the brain. This has been described in children. I realize I am simply a plastic surgeon, but I still remember this from medical school. The symptoms can lessen to being back to normal as the body recovers on it’s own, it is also possible for this to be permanent. Historically St. Vitas suffered the same thing. He would start dancing without control at any time. I hope this is of some help. I have tried to contact today show, the high school, two parents phone numbers listed on this site, msnbc, the local news station that originally ran this story in LeRoy, however there seems to be a difficulty in getting emails to be read, phones to be answered. Strep throat is highly contagious and needs to be diagnosed and treated in a timely fashion. This is one of the results. I wish you good luck in these endeavors.
I spoke with the father of one of the affected girls last night. The 12 girls symptoms have developed at different times, and there appears to be other issues regarding the school grounds that have come to light. This leads me to think post streptococcal syndrome is less likely the culprit. Still worthy for parents to keep in mind when dealing with throat infections.
One other area to check on is the school cafeteria.
Did the kitchen there make any recent bulk product changes?
There are certain cooking oils which affect estrogen levels in humans
with females being more sensitive.
I just read that GMO foods (genetically modified) can cause nervous disorders. You might want to look into this. I mean it is widely known that GMO foods are toxic yet there is a deregulation of them so that the biotech and agribusinesses can stay wealthy. I would definitley find out if those girls have been eating genetically modified foods, which ones. The GM crop giants are soy, corn, alphalfa (used as animal feed), sugarbeet and rice.
just google: GMO/nervouse tick
Dear Chula,
Thank you for alerting us about GMO foods. Shall definitely read more on this subject.
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Thank you, for citing us.
I am so sorry for what’s happening. Have you considered that the problem may be spiritual? Any of the girls involved in anything out of the extraordinary?
I have to recommend, see a real pastor from a real Bible Believing Church.
This is about 12 girls who are from the same LeRoy high school, and developed tourettes like symptoms around the same time. The search for a common cause or causes is imperative